How Specialty Pharmacies Support 30 Million Americans on Rare Disease Day and Beyond
Specialty Pharmacy Times, Kelly Ratliff |
If asked to name a rare disease, I imagine most people would struggle; however, they may actually know someone—a neighbor, cousin, friend, or parent—who is battling one. The shocking reality of rare diseases is that they’re more common than you think. A disease is defined as rare when it affects fewer than 200,000 Americans at any given time. There are 7000 identified rare diseases globally and it is estimated that 30 million Americans are currently coping with a rare disease. Yet, only 5% of rare diseases have an FDA-approved treatment. To drive awareness that can lead to support, research, and new treatments, the National Organization for Rare Disorders (NORD) launched Rare Disease Day, which is observed in the United States annually on the last day of February.
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